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Monday, January 27, 2014

Pain and Passion



Is it just ME, or do you, too, know someone who is or did suffer from Alzheimer's Disease?

It seems to be one of those "things" that became a household word over night. For my family, it became very real when Uncle Bill, a world renowned equine surgeon was stricken, seemingly from out of the blue.  Admittedly, however, the rear view mirror did seem to have tossed us a few clues.

We watched his mind and his body change.  We witnessed personality changes we were not prepared for.  Uncle Bill's case seemed to advance rapidly and, in just a few years, Uncle Bill's life transitioned completely.

In the years he endured all that Alzheimer's gave and all that it took, we sought information, answers, options, treatments and ultimately a safe place for him to die as peacefully as possible.

Uncle Bill, who had lectured around the world, taken veterinarian medicine from the dark ages and developed new surgical procedures, no longer remembered all that he had accomplished; tragic in so many ways.

Throughout it all, Aunt Audrey stayed strong (she always does), did whatever the moment demanded of her and protected her husband of more than fifty years from what he could not understand.  He died on her 79th birthday.

Flash forward eight years...today...

I was working on a Press Release for a member of The International Women's Leadership Association (TheIWLA), Sally Moore, and perhaps for the first time looked at Alzheimer's from a different perspectives: that of they who care for the people with Alzheimer's Disease.

Sally is the Founder,President and Executive Director of 'Perks N Moore', a non profit company inspired by Sally's personal experience as a Caregiver of twelve years for her mother and her husband, both of whom suffered from Alzheimer's.

Here's what I never knew: 40% of Caregivers and 60% of family members who care for a loved one with Alzheimer's actually die before the person they are caring for!

Sally focuses on the need of the Caregiver to have resources and support to balance-out the overwhelming stress their charge places on them.  Education, mentorship, and socialization are among the needs of those who care for those who can no longer care for themselves.  

Alzheimer's clearly affects the life of the Caregiver as profoundly as he or she medically afflicted.  WOW.  Did I really get this when Aunt Audrey was suffering as much as Uncle Bill?  Now, I realize it is the Caregiver, aware of how life is changing for her,  while the only grace of Alzheimer's is that the patient is somewhat protected by the very nature of the disease.

I understand the passion that is behind Sally Moore's mission and I am grateful that she is dedicated to those who can so easily be forgotten; the Caregivers.

As the aging adult population grows, the odds of more being stricken with quality-of-life-robbing-disease, like Alzheimer's, goes up.  Sally is in the right place at the right time and we need to support her mission in as many ways as possible.  

I'm not (just) talking about money. I'm talking about appreciating those who care for others - in all cases and with all diagnosis.  Saying "thank you", lending a hand, spending quality time even if just for a few minutes are all things we can easily do for those who make such an incredible difference in the last years, days and moments of others' lives.

So, IS it just me, or do you, too, feel greater appreciation for all those who step up when needed, for those who always seem to be in the right place at the right time and just do - whatever - it is that needs to be done?  There are amazing people in the world and among those who are sometimes overlooked are Caregivers.

                                              
            Thank a Caregiver, today and every day                  


                        Thank you, Sally Moore

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